There is a huge array of research taking place at UHB and a number of active public involvement groups.
Patient and Public Involvement Forums (PPIF) exist at each of the 4 UHB sites (Good Hope Hospital, Heartlands Hospital, Queen Elizabeth Hospital and Solihull Hospital). The PPIFs consist of 15-20 staff members, patients, carers and the public to ensure all voices are heard in the development of each hospital. Although the PPIF primary aim is service improvement rather than research, the groups are happy to be invited to get involved in research too. Researchers can attend their monthly meetings or separate meetings can be arranged if necessary.
Contact: To reach out to one of the four PPIFs, email PIE@uhb.nhs.uk.
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The Youth Voice Council (YVC) is one of the patient carer councils at UHB and exists to improve the care of 16-24 year old patients at UHB hospitals. The group meets monthly and although its focus is service delivery, it can be contacted for research involvement purposes too.
Contact: Email rebecca.mcnamee@uhb.nhs.uk
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The RESOLVE PPIE group can assist with chest and lung surgery research, with members having lived experience of lung cancer, COPD and surgical pain.
Contact: Email aya.osman@uhb.nhs.uk
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The Respiratory Patient Advisory Group (PAG) can support with clinical trials and academic research in respiratory disease, including AATD, COPD, ILD.
Contact: Email anita.pye@uhb.nhs.uk
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Members of the Severe Asthma Focus Group have lived experience of severe asthma: some members have been involved in previous clinical trials, others are passionate and very engaged about their condition and want to learn, understand more and make a positive change.
Contact: Email hgsrespiratoryresearch@uhb.nhs.uk
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The CRAG (Clinical Research Ambassador Group) has been running for over 10 years and is made up of ex-critical care patients and relatives of ex patients. They also work on trial management groups and have been involved in grant applications.
Contact: Email teresa.melody@uhb.nhs.uk
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The main focus of the CRF Scientific Advisory Committee PPIE Group is trial feasibility – this is conducted prior to finalisation of the protocol for mainly academic trials within the NIHR/Wellcome Trust Clinical Research Facility (CRF).
Contact: Email linda.coughlan@uhb.nhs.uk
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The Liver & Gastro-Intestinal PPIE group is part of the NIHR Birmingham Biomedical Research Centre and supports research into inflammatory liver disease and inflammatory bowel disease.
Contact: Email l.chapman.1@bham.ac.uk
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The West Midlands Secure Data Environment (SDE) Data Access Committee is made up of members of the public from across the region who review applications from research teams to use health data stored in the SDE. They ensure that, whenever researchers are given access to data, it is to support research that is in the public’s interest.
Contact: Email alice.young@uhb.nhs.uk